SCHAF says 150,000 sickle cell patients born annually
by Remi Feyisipo
December 5, 2014 | 12:00 am| | | Start Conversation
A non-governmental organisation, Sickle Cell Hope Alive Foundation (SCHAF) says about 150,000 (SS) Sickle Cell child are born annually in Nigeria.
The NGO also said it was unfortunate that about 100,000 SS patients who are mostly children under 5 years die annually.
The Founder and President of SCHAF, Adeyinka Falusi, a Professor speaking on the topic “Religious, youth organisations in the prevention of sickle cell disease” during its 2014 end of the year awareness program at University College Hospital (UCH), Ibadan, the Oyo state capital on Wednesday called for early detection of the disease in Nigeria so as to reduce the disease to the bearest minimum.
He also urged members of the public, government and private organisations to assist the sickle cell patients.
Falusi advocated for early detection of the disease noting that everything must be done to discover genotype of every child.
He declared that the program which included lectures on awareness of the disease, provision of drugs and other relief materials to sickle cell patients in Oyo state was part of the efforts of the organization in alleviating the suffering and challenges of the sickle cell patients in Nigeria.
Though she never had any child as a patient, Falusi said her 35 years in service and sufferings of the patients pushed her to established the foundation.
“over the years I have created awareness about the disease and supported patients in many ways”.
Government, she noted needed to pump more money to support the sickle cell research, do more in creating awareness, reaching out to patients and devoting more time to ameliorate the suffering of the patients.
On the challenges facing the patients, she stated that the best way to assist the patients is to employ them, provide vocational trainings so as to make them relevant and economically viable in the society.
Earlier in his opening remarks, the chairman of the occasion, who is also the managing director of Reals Pharmaceuticals, Ade Popoola represented by Kunle Adesoye said that it was important for members of the public to know their genotype as a way of preventing the disease.
Popoola noted that having the disease is not a death certificate, saying proper management is the panacea to survival.
Proper awareness and knowledge, he also pointed out, is the best way to eradicate the disease across the country.
Highlight of the event was the symbolic presentation of drugs and other relief materials to the patients.
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